Northern New York Newspapers
Watertown Daily Times
The Journal
Daily Courier-Observer
NNY Business
NNY Living
Malone Telegram
Sat., Jul. 12
Serving the community of Ogdensburg, New York
Related Stories

Thanks for supporting CF research

print this article
e-mail this article

To The Editor:

Thank you to the north country communities, families, and friends who supported our Great Strides Walk and Cystic Fibrosis research in the past.

Almost 100 percent of the of the research done to find a cure for cystic fibrosis is funded from individual fund raising and the annual Great Strides Walks across the country. Because of this individual support, a drug, Kalydeco was approved by the Food and Drug Administration last year and has made a big difference for people with the D551 mutation, which is about 5 percent of those with CF. This year two new drugs, VX809 and VX661, are in the trial stage. These new drugs offer great hope. Kalydeco, VX809B, and VX661 all are aimed at the underlying causes of CF, whereas current medications are aimed at reducing the symptoms.

For those wishing to walk in the Great Strides Walk or for more information, please visit the website: or call the Syracuse Cystic Fibrosis Foundation at 463-7965.

Nancy Rudiger


Connect with Us
OGD on FacebookOGD on Twitter
Thursday 's Covers
Sports cover
Our Community cover